So for my first post I figured it was a good opportunity to start from the beginning.
Our beginning is very much like everyone else's I suppose. I had a whirlwind romance and within a year was expecting a baby with the most wonderful man I have ever known. It was all what we would consider to be normal for the first six months, and then the scariest thing I ever imagined happened... It went wrong!
Being rushed to hospital in an ambulance with a driver, female I might add, telling you it's all in your head and just Braxton Hicks is terrifying, especially when your body is telling you that something is really not right. After being admitted we were told that I was in for at least five more weeks and then they would consider induction as at 30 weeks pregnant me and my baby were at war. Only two days later we were rushed into theatre as my baby had decided enough was enough, my body couldn't fight anymore, and it wasn't fun being pregnant like this.
Two hours of surgery later and my princess was born. Weighing only 2lb4ozs and smaller than the palm of my hand, my perfect princess was finally here. She was of course far from perfect. Being so small her tiny blood vessels couldn't handle the pressure of keeping her body going, and one burst. Fortunately it was a small bleed but it was in her head.
Two days after our little lady was born we were told the devastating news... She had brain damage and would be disabled. She had dead brain cells on the left side that control her motor sensory skills. Her diagnosis, Right Sided Hemiplegic Cerebral Palsy. But that was not all, after a few more days they noticed that she was developing Hydrocephalus too.
And so began our journey as parent carers.
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